- What does EDS pain feel like?
- Is Ehlers-Danlos considered a disability?
- Does hypermobility syndrome get worse with age?
- What is the life expectancy of someone with EDS?
- Does hypermobility mean you have EDS?
- At what age is Ehlers-Danlos Syndrome diagnosed?
- Why are EDS patients called zebras?
- Is Ehlers-Danlos a chronic illness?
- What is the difference between Ehlers-Danlos and joint hypermobility syndrome?
- Does Ehlers-Danlos cause hair loss?
- What is the medical condition Eds?
- Does EDS affect teeth?
What does EDS pain feel like?
I was asked recently to describe what my body feels with EDS.
I described the feeling of being tenderized with a mallet all over my body.
Not enough to break bones, but hard enough to leave bruises.
This is my daily experience even with the aid of pain meds..
Is Ehlers-Danlos considered a disability?
If you have vascular or regular EDS with severe symptoms that prevent you from working, you may be able to get disability. … Ehlers-Danlos can affect your skin, joints, and blood vessel walls; the syndrome is characterized by extremely flexible joints and very stretchy, fragile skin.
Does hypermobility syndrome get worse with age?
In many cases, the joints become stiffer with age, although joint hypermobility and its associated symptoms can continue into adult life.
What is the life expectancy of someone with EDS?
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
Does hypermobility mean you have EDS?
Joint hypermobility, for example, is relatively common, affecting around 1 in 30 people. So it’s unlikely to be caused by EDS if you do not have any other symptoms. Your GP may refer you to a joint specialist (rheumatologist) if you have problems with your joints and they suspect EDS.
At what age is Ehlers-Danlos Syndrome diagnosed?
The mean age of patients was 41 years (the mean age at diagnosis: 28 years). Overall, each patient with EDS required an average of 12 different kinds of medical services in relation to their disease (three more than the average number of services required by the 16 rare diseases surveyed).
Why are EDS patients called zebras?
According to the international Ehlers-Danlos Society, the reference to zebras is borrowed from a common expression heard in medicine: “When you hear hoofbeats behind you, don’t expect to see a zebra.” In other words, medical professionals are typically taught to look out for more-common ailments rather than testing for …
Is Ehlers-Danlos a chronic illness?
“Chandelier” singer Sia has revealed she has a rare genetic condition called Ehlers-Danlos syndrome that results in chronic pain. The disease affects 1 in 5,000 people globally. It causes hypermobile joints, loose, stretchy skin, and ongoing fatigue, which makes someone more prone to injury and chronic pain.
What is the difference between Ehlers-Danlos and joint hypermobility syndrome?
While hypermobile EDS (hEDS) remains the only EDS without a confirmed cause, the criteria for hEDS diagnosis have been tightened compared to the 1997 Villefranche nosology as determined by international consensus. The essential difference between HSD and hEDS lies in the stricter criteria for hEDS compared to the HSD.
Does Ehlers-Danlos cause hair loss?
“Ehler-Danlos syndrome is a degenerative condition and many people are mis-diagnosed. “People who have Ehlers-Danlos syndrome also suffer from thin, weak hair and bad hair growth and this began to affect me. “It is disturbing to see your hair thinning.
What is the medical condition Eds?
Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.
Does EDS affect teeth?
While many people with EDS not have any notable oral problems specifically due to EDS, this connective tissue disorder can affect the teeth and gums as well as the temporomandibular joint.